3 Years Old

Hello Everyone,

I am so sorry that it has been so long since I last updated you on Tre's condition. He is now 3 years old. He is an amazing little boy that has touched so many hearts. His smile is comforting, his laugh, reassuring, and his life a picture of hope.

He is doing well. I hope that this news will encourage you that are scared or worried and uncertain. Tre is meeting all of his milestones and is doing everything he should be doing. We are seizure free and still no shunt. The only effects that we have found from the Dandy-Walker are excessive Hyperness and lack of sleep. He has a very hard time falling asleep and staying asleep. The doctors will not say that this is because of the Dandy-Walker, but I am almost certain it is. He takes a medicine at night called Clonodine to sleep. This medicine helps him but telling his brain to calm. It does not keep him asleep but it does at least get him to a point where he can fall asleep. He no longer takes naps because we find that will really interfere with his ability to fall asleep. He goes to the Pediatrician on 03/30/2012 for his 3 year check up, and will go back to the Pediatric Neurologist in may. He also sees a Pediatric Neurologist Sleep specialist that is trying to help us with his lack of sleep, but he is more worried about when tre wakes up he gets in our bed. Personally this is not my issue. My issue is when my son wakes up he cannot go to sleep, and that my son cannot fall asleep at night without medication. However they do not see it that way. Doctors are very special at times.