Our First Birthday is Approaching

Tre will be 1 on the 18th of march. Last year at this time if you would have asked me if I thought Tre would be where he is I would have honestly said NO. To think I was so terrified for 9 long months just to be over anxious and have high blood pressure for no reason. Tre is doing great. He is walking now and that is a milestone no one ever thought would come so soon or that he would pick up so well. Tre can say a few words like mama, dada, hot, out, no, stop, ball, shoe, choo choo, Glorianna, Alex, and a few that sound like the others! He loves to pick on his sister and will scream her name until she responds. He is a blessing from GOD. A real blessing, a miracle that has brought so much light into my life and faith that has overwhelmed my family that I honestly don't think I can imagine the day I actually considered aborting the pregnancy. Check out Tre's feature in the Dandy- Walker Alliance Newsletter and keep the faith.

Sorry It has been so long (We are now 9 months old)

Well everyone Tre turned 9 months on 12/18/2009. We went for our 9 month appointment at our pediatrician's office and he weighs a whopping 27 pounds and is 30inches long. His head is also 49cm around. Needless to say Tre is a very big boy! We have also been following up with the Pediatric Neurologist every 2 1/2 months, which our doctor moved away so we have a different one, everything has been going well with the medication. Tre takes Kepra twice a day and has had no more spells. He is also right on target according to development. He can pull himself up and walk along everything he can pull up on, and he has started to finger feed himself. He babbles and says mama and dada. Dada was his first word. He adores his sister and picks at her every chace he gets. Tre had a great frist christmas. I hope that this blog finds everyone well!

We are home from the hospital

So we were released finally after an MRI and EEG. Tre now has a tendency to have seizures and will be taking a medication 2 times a day at least for a year. Here is the best news he has a partial vermis so he has a Dandy-Walker Variant as opposed to a full malformation. This is why he is doing so well developmentally. I Will keep everyone updated but we are very very happy to be home. Thank you for your prayers

Not So Well

So a few days ago tre started having these spells where he would kinda zone out and you couldn't get his attention so we called the doctor and yesterday made a trip to the emergency room just to be admitted. At first they drew his blood and then started an IV for fluids and antibiotics for a possible ear infection that is only added to the situation. Today they hooked him up to a video EEG to watch for Seizures and he has been so uncomfortable because we have this portable pack that has to be within 4 inches to his head, we can't leave our hospital room or even sit on the other side of it. At 330pm est time to day our pediatric neurologist came in to read it's progress what he found was that on the left side of tre's brain it seems that there is indeed a tendency for seizures he didn't have any spells so it was hard to tell 100% because the occurrence it showed was only for a second and nothing else happened. He said if it would have been severe then the erratic nature of the lines would have continued longer. Well he was asleep the whole time so that is scary that he may seize in his sleep. Well then the lady came in to check on him, the one that put all the little wires on his head and while she was here he had an episode for like 10 seconds so she noted the computer then at about 830 he had another one. He is asleep now but not very comfortable. He will have an MRI tomorrow to determine if this is being caused by fluid or just a coincidence. I must say I am sooooooo scared and worried. I surely will not sleep but stay awake to watch my precious little boy. I just don't understand why this is happening now things have been going so well then on top of that we just found out that in 3 months his pediatric neurologist will be moving away. As if trying to find someone well versed in this disease is not bad enough finally you talk to someone who has heard about it and has other patients and then they leave. Please pray for my son. He is really having a hard time right now and only god can help.

Isn't he getting so BIG!!!!

Tre @ 4 1/2 months

Glory and Tre! She is really trying hard to teach him his ABC's

Not the Best Blogger but here is an update!

So....they have scheduled Tre's MRI....I am scared I do admit. It scares me that they have to sedate him for the MRI not the procedure itself. It also scares me to think they may have something negative to say when everything has been so positive. The MRI will be September 23, 2009 @ 815am. We have to be at the hospital by 7am for them to start the sedation.

On another note tre is still doing very well. They have started us working with him on the floor more because he was having a bit of a hard time rolling over. They think that his brain has remapped the idea for rolling over and he arches. He rolls fine from belly to back but not quite that good from back to belly, but he is getting much better. Basically we have to give him lots and lots more time on his tummy while he is awake. The problem is he thinks his back is for playing and belly is for sleeping! When he tries to roll, or when you have him sitting or standing he arches his back and flings his arms back. Most babies do this, but the difference is their brains are able to say that is wrong and uncoordinated. That is why they think his brain is mapping the idea it is ok, so we have to work with him to teach him it is not. We are all working on it! He doesn't mumble any actual constantents yet or make mama dada noises. That is a bit behind too but he is very vocal and has began squealing! I am sure the mama and dada's are soon to come.