Friday, September 4, 2009
Not So Well
So a few days ago tre started having these spells where he would kinda zone out and you couldn't get his attention so we called the doctor and yesterday made a trip to the emergency room just to be admitted. At first they drew his blood and then started an IV for fluids and antibiotics for a possible ear infection that is only added to the situation. Today they hooked him up to a video EEG to watch for Seizures and he has been so uncomfortable because we have this portable pack that has to be within 4 inches to his head, we can't leave our hospital room or even sit on the other side of it. At 330pm est time to day our pediatric neurologist came in to read it's progress what he found was that on the left side of tre's brain it seems that there is indeed a tendency for seizures he didn't have any spells so it was hard to tell 100% because the occurrence it showed was only for a second and nothing else happened. He said if it would have been severe then the erratic nature of the lines would have continued longer. Well he was asleep the whole time so that is scary that he may seize in his sleep. Well then the lady came in to check on him, the one that put all the little wires on his head and while she was here he had an episode for like 10 seconds so she noted the computer then at about 830 he had another one. He is asleep now but not very comfortable. He will have an MRI tomorrow to determine if this is being caused by fluid or just a coincidence. I must say I am sooooooo scared and worried. I surely will not sleep but stay awake to watch my precious little boy. I just don't understand why this is happening now things have been going so well then on top of that we just found out that in 3 months his pediatric neurologist will be moving away. As if trying to find someone well versed in this disease is not bad enough finally you talk to someone who has heard about it and has other patients and then they leave. Please pray for my son. He is really having a hard time right now and only god can help.
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Hi, I just found out my daughter which was born Friday has Dandy Walker syndrome.I will keep you & your son in my prayers. Keep us posted on the outcome!
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